Alpha-1 Foundation

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affectedby Alpha-1 worldwide.

The Alpha-1 Foundation is a not-for-profit Florida corporation founded in 1995 by John Walsh, Sandy Lindsey and Susan Stanley, three individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1). A majority of the Board of Directors is either diagnosed with Alpha-1 or has a family member diagnosed with Alpha-1.

The Foundation has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with Alpha-1. It has fostered collaborations with investigators throughout the United States and Europe, working closely with the National Institutes of Health (NIH), the Food and Drug Administration (FDA), individuals affected by Alpha-1, and the pharmaceutical industry to expedite the development of improved therapies.

The Foundation has invested $54 million to support Alpha-1 Antitrypsin Deficiency research and programs at 100 institutions in North America, Europe, the Middle East, and Australia.

The Foundation participates in industry and government liaison groups and develops strategic alliances with government, industry and other national and international health and research organizations

American Lung Association (ALA)

The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research. With the generous support of the public, we are “Fighting for Air.” When you join the American Lung Association in the fight for healthy lungs and healthy air, you help save lives today and keep America healthy tomorrow.

COPD Foundation

COPD Foundation is a not-for-profit organization created in 2004, with offices in Washington, D.C. and Miami, FL.

The COPD Foundation was established to undertake initiatives that result in expanded services for COPD and improve the lives of individuals affected by COPD. The Foundation’s activities focus on achieving these results through research, education and advocacy programs that will lead to prevention, and someday, a cure for this disease.

Currently, there are 18 members in the Board of Directors who volunteer their time and resources to helping advance the Foundation’s mission and purpose.

Lung Cancer Alliance

Founded in 1995, Lung Cancer Alliance are the oldest and leading non-profit organization dedicated to saving lives and advancing research by empowering those living with and at risk for lung cancer.

What we do:

• Offer personalized support, information and referral services at no cost through a team of trained, dedicated staff members to help patients, their loved ones and those at risk.
• Advocate for increased lung cancer research funding and equitable access, coverage and reimbursement for screening, treatment, diagnostics, and testing.
• Conduct nationwide education campaigns about the disease, risk and early detection.

Mission:  Saving lives and advancing research by empowering those living with or at risk for lung cancer. 

Vision: Tripling survival by 2020

Prevent Cancer Foundation